We did have some events last night. We don't know whether it was the additional platelets he received or his ATRA but when mom and dad came back from getting some Thai food, Everett was vomiting repeatedly. This went on for almost an hour when they finally gave him some Ativan which made him feel better but also kept him up until 9:15. So far so good today. He seems to be sleeping more (he's in the midst of a 3 hour nap), which we assume to be due to his blood counts lowering (this is expected with the treatment). Hopefully he will go to bed earlier tonight...
The doctors gave a report and said he is progressing fine and the vomiting is just a part of the process. Although it doesn't make for a great blog post, we do appreciate the 'quiet days' the most. Everett enjoys going to the "playroom" and it is usually the first word out of his mouth after waking up in the morning and from naps.
We met with some social workers and Val has agreed to do a research study on stress management for Mothers of Leukemia patients. Not sure how this differs from the father's stress, but perhaps the study will shine more light on this. We discussed possibilities of Make-A-Wish, although we're not sure if we want to take advantage of this or not. As much as I'd love a free Disney trip or the like, I'm not a very good gift recipient. Taking advantage of the countless offers of generosity has been difficult for me. Even taking free coffee from the Ronald McDonald house feels strange.
We hope to get out on the 30th to celebrate our 4th anniversary but perhaps just a dinner. When we're away from Everett we are anxious and uneasy that he will want us or something will happen. As strange as it sounds, being in the 14' x 14' room next to him is where we want to be as long as he is here sick.
Gotta go, someone is awake ;)
I hope he is feeling better after his nap! It has to be hard leaving him for only a brief time and coming back to a sick little guy :( Hugs to you all, xo
ReplyDeleteEverett, you are such a strong little man,we are very proud of you and how well you have done so far.Just remember how much we all love you and Stevie cant wait to play with you again! Im so glad you wont remember being sick when you get older bc you were so little! Poppy is looking over you, Im postive.We miss you so much cant wait to see you soon after you get through your illness!Keep giving your parents those little smiles! You are an awesome little man!
ReplyDeleteJohn & Val,
ReplyDeleteWe just found out last night from our son Ben about Everett's illness and then our daughter Hannah sent us the info for your blog. We are keeping all of you in our prayers, especially your two beautiful boys. If there is anything we can do for you back here in Oil City, please let us know. Stay strong.
Doug & Mike Webber
Neighbors at 149 W. 3rd. St.